The Rebuttal

Bill Shorten is blowing his own trumpet. Mr Shorten is, of course, the Minister for the NDIS. Since Labor got back in power Shorten has been hellbent on making the NDIS sustainable. His focus has mostly been on fraud and people that abuse the NDIS. He has been targeting shonky service providers. To be fair, he has been quite successful with this. Recently they publicly listed service providers who have been fined and 126 providers who have been banned altogether. It needed to be done.

Now, I am highly critical of Mr Shorten’s approach. Not because I think it’s necessarily wrong, but rather because I think his approach is an easy way to seem like he is doing something about making the NDIS sustainable. It looks good when can scream that $1 billion has been saved by targeting fraud. Well done on that I say. Where I am critical is that seems to be all Mr Shorten focuses on and he is neglecting many other key issues.

For mine, one of the biggest wastes that happens in the NDIS occurs because many delegates and planners are ill equipped for the complex job that they are tasked with. I know from working within the sector that there are many great LACs and many good delegates. But far too many, to be totally blunt, don’t know what they’re doing.

How else can you explain that my wife, an Auslan user who actively participates in the community through sport and theatre, got just $300 for Auslan interpreting for a year. It was her first plan after waiting almost 12 months for her access to be granted. On appeal she got another $1300. So bad was it that a friend had to offer some of their NDIS interpreting budget so that she could participate in activities.

She, like thousands upon thousands of NDIS participants, has had to review and now go to the Tribunal. What this costs the NDIS in legal fees, administrative costs is in the many millions of dollars. Not to mention the trauma and stress this is causing so many participants that cannot be calculated in monetary terms. It is a disgrace!

My wife’s budget, to cover private medical and social needs, would have covered about six bookings. This is given that interpreting bookings are a 2 hour minimum. Yet, some bright spark in the NDIS has deemed that this is totally adequate. Now, before anyone asks; yes she provided comprehensive reports and evidence. I don’t think the delegate or the LAC even bothered to read them.

You do not hear Shorten talking about this. Instead these many, many participants who are receiving inadequate and poorly thought out plans are being gaslit. So people like my wife, and there are thousands of them, are “At the heart of the NDIS” says Shorten. “Ensuring sustainability was never about cutting participants plans.”, he claims. These are direct quotes from Shorten in a recent Linkedin post. (Let’s not forget that he also calls disability activists who challenge and oppose him, “EXTREMISTS”)

Well Sally would beg to differ. (Not her real name.) Sally had her access to the NDIS approved in 2018. She was assisted by an organisation to apply. Sally has very complex needs. It seems, and she is unsure of this, that her original access to the NDIS was granted because she has a psychosocial disability.

But Sally has many different needs around her disabilities. She has mobility issues. These mobility issues are the result of many complex health issues and are permanent. She requires aids such as a wheelchair and other assistive technology to be able to live independently.

To access the community she requires support workers. To maintain her home she requires support workers as well. Her psychosocial disabilities compound the issues. Depression and extreme anxiety means, at its worse, that she struggles to confront and complete everyday tasks. Capacity building and support workers were integral parts of her plan to address the psychosocial issues as well as the mobility and physical ones.

And you know what? I reckon you could call Sally an NDIS success story. Since 2018 the NDIS assisted her to develop more confidence and address her depression and anxiety. The support workers assisted her to develop skills and confidence. The ability to access the community with support and aids improved her over all mental well being. These are all reasons that the NDIS was established.

Then disaster struck. The NDIS revoked her access. They told her that she no longer qualified for the NDIS and support was withdrawn. She appealed and submitted comprehensive reports of her needs and disabilities, all to now avail. Sally is now trying the Tribunal, this will be a long and drawn out process with no guarantee that her supports will be reinstated.

As I write this I have to stop and breathe. I hold my head in my hands. I try to make sense as to why Sally’s support has been removed. The reason given for removing her access is that she has not explored all treatments.

Apparently, after six years of support that has achieved enormous gains for Sally, her needs are “medical” and there are “treatments” available which are not NDIS responsibilities. It’s all in her head you see, everything including her physical disabilities. Sadly, the trauma that Sally has experienced has seen her regress. Her mental health is shot. The future remains uncertain and she currently has minimal support.

No plans have been cut? What bollocks Mr Shorten. People like Sally are being kicked off the scheme. Your “TRUMPET BLOWING” is gaslighting at its worst. Just ask my mate Dan who recently had his plan cut by over $50 000. In fact a recent article in The Saturday Paper titled, NDIS Crackdown Wrongly Withdraws Support outlines how many people are being unfairly removed from the NDIS and given only 28 days to demonstrate why they should remain on the scheme. It is disgusting.

Well done Mr Shorten on tackling the fraud. Now what are you going to do about the rest of it? How are Navigators and foundation supports going to help? Indeed, what will Navigators and foundation supports even look like? We all don’t know. The disability community and their associates are being severely impacted by NDIS decisions and uncertainty, please listen to their stories.